Advantages and disadvantages to using registry for outcomes research
You are a rheumatologist at a Hospital and have established a clinical registry that includes patients with rheumatoid arthritis seen in our outpatient clinic. You are planning to use the registry for outcomes research, so you need to know about the exposure of your patients to their medicines and about their outcomes. [No more than 500 words].
a. Please tell me the advantages and disadvantages to using these methods WITH YOUR
REGISTRY.
• Patient self-report via email/U.S. mail questionnaire/phone call
• Pill count in the clinic
• Medication possession ratio calculated with data from their insurance companies.
• Use of an electronic monitor on the cap of their prescription bottles
b. Please tell me how you plan to quantify a measure of disease activity IN YOUR REGISTRY participants.